Historias inspiradoras de pacientes

Lea nuestras inspiradoras historias de los pacientes y familias que han sido tratados en Nicklaus Children's Hospital.

Si usted tiene su propia historia exitosa de paciente y desea compartirla para inspirar esperanza y ayudar a otras familias encontrar las respuestas que buscan para sus hijos, favor de contactarnos a: info@nicklaushealth.org.



Mientras lee estas historias inspiradoras, lo invitamos a ayudarnos a estar allí para los niños haciendo una inversión en su futuro a través de una contribución a la Fundación Nicklaus Children's Hospital.
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Gianna: Young Sarcoma Patient Shares Her Journey to Inspire Others

agosto 03, 2022

In March of 2022, little Gianna began experiencing a sharp pain in her leg that was causing her to limp. Her mother, Kathy, took her to the pediatrician who recommended she have an X-ray to see what was causing the pain.


Tomas’ Remarkable Story

agosto 02, 2022 – Tomas was at home with his family in August 2021, when he suddenly collapsed and stopped breathing. Upon arrival at the hospital, Tomas still had no heart function and was emergently admitted to the Pediatric Intensive Care Unit and placed on extracorporeal membrane oxygenation ECMO, a heart-lung bypass therapy that would give his heart time to gain strength and recover.

Meet Anya, Lily and Kian: First set of triplets delivered at Jupiter Medical Center, a Nicklaus Children’s Hospital Affiliate

agosto 01, 2022 – Lana was speechless when she and her partner found out they were expecting triplets after a successful IVF fertility treatment. The couple experienced many emotions, including excitement about growing their family, and concern about whether there would be any health risks associated with carrying the triplets to full term. At 32 weeks, Lana delivered the triplets at Jupiter Medical Center.

Their Medical Mystery Solved, a Family Helps Create Awareness of Beckwith-Wiedemann Syndrome

julio 22, 2022 – Crystal grew up believing that she was somehow “different” from other people. It wasn’t until the birth of her second child in 2017 that the Florida gulf coast mother of three found answers to personal mysteries she had pondered throughout her life.

La historia de Roy: La tecnología de realidad mixta ayuda a los médicos a salvarle la vida a un niño

junio 13, 2022 – El Laboratorio de Proyectos Avanzados de Nicklaus Children's lleva esperanza a un niño que tiene una forma rara de cáncer gracias al uso de modelos impresos en 3D y la realidad mixta.

Joven estrella de fútbol supera lesión deportiva

junio 06, 2022 – Stephanie juega al fútbol desde los cuatro años. La arquera estrella no solo juega para su escuela secundaria, sino que también forma parte de un equipo viajante competitivo que ha ganado premios en toda la Florida. Su brillante carrera en el fútbol se detuvo repentinamente cuando se lesionó el hombro.

Luchador de escuela secundaria se salva tras sufrir un paro cardíaco

mayo 24, 2022 – Poco después de cumplir 17 años, Javon, atleta de la Escuela Secundaria Miami Southridge Senior, sufrió un paro cardíaco durante una práctica de lucha. Gracias a la acción rápida del personal de atletismo y al uso de un desfibrilador externo automático (DEA), el corazón de Javon se estabilizó y el atleta fue transferido a Nicklaus Children’'s Hospital para recibir atención.

 

Sebastian supera el cáncer de cerebro

mayo 23, 2022 – La madre de Sebastian se preocupó cuando su hijo comenzó a sentir un dolor de cabeza sordo que no se le iba. Tras varios días de dolores de cabeza continuos, el pediatra de Sebastian recomendó que la familia lo llevara a la sala de emergencias para realizarle más pruebas. Le diagnosticaron un tumor cerebral y acumulación de líquido cefalorraquídeo (LCR) en el cerebro. Los médicos inmediatamente entraron en acción para crear un plan de tratamiento.

Piper’s Story: Navigating Life with Ulcerative Colitis

mayo 09, 2022 – Piper became incredibly sick in December of 2020. Just days after Piper turned 11, her parents were dismayed to learn that she had ulcerative colitis. The family went to see Dr. Muniz Crim, who, after explaining various treatment options, she suggested Remicade infusions would be the best treatment for Piper. 

Emet’s Brachial Plexus Injury Has Not Hindered His Dream of Becoming a Power Ranger

mayo 04, 2022 – At his birth, Emet’s shoulder became stuck in his mother’s pelvis, causing an injury to his brachial plexus, a network of nerves in the neck that control the arm. The family was referred to the Brachial Plexus and Peripheral Nerve Program, where Emet had surgery to repair the nerves. He continues his therapy and visits Dr. Berger for quarterly checkups. Emet dreams of becoming a Power Ranger when he is older. 

Mo's Story

abril 25, 2022

As a mother of three daughters, Moraima is no stranger to the wave of emotions that come with raising teenage daughters. That became especially important when she tragically lost her husband. Moraima’s youngest daughter was only eight at the time and had a difficult time coping with her father’s passing. This is when she reached out to Nicklaus Children’s Hospital to find support for herself and her daughter. 


Paciente del mes: JP

marzo 28, 2022

Cuando John y Jess se enteraron de que a su primogénito JP se le había diagnosticado en el útero una obstrucción de la vejiga que requería una cirugía antes del parto, su mundo se detuvo. Debido al diagnóstico, JP fue ingresado en la Unidad de Cuidados Intensivos Neonatales (NICU, por sus siglas en inglés) después del parto, donde pasó los primeros 6 meses de su vida.


Eric Undergoes Less-Invasive Heart Valve Replacement with FDA-Approved Harmony Transcatheter Pulmonary Valve

marzo 03, 2022 – Eric was born with critical pulmonary valve stenosis, a defect affecting the heart valve that connects the heart and lungs. He was only a week old when he underwent his first heart procedure, balloon dilation of a narrowed heart valve in his heart via cardiac catheterization. By his late teens, Eric was approaching the next step in his heart journey, a valve replacement for his pulmonary valve. 

Heidi’s Journey with Trisomy 18: Defying the Odds

marzo 02, 2022 – Heidi was born with Trisomy 18, a rare genetic condition that causes various developmental differences. Early on, her mother learned that Heidi would be born with several complex conditions, including a cleft lip and palate and a hole in her heart known as Ventricular Septal Defect (VSD). They were given a devastating prognosis in that there was a 90 percent chance she would not make it past her first birthday. However, Heidi beat those odds.

Paciente del mes: Alexandra

febrero 23, 2022 – Nacida prematuramente y con complicaciones cardíacas, Alexandra fue descrita como una bebé milagro. Con apenas unos meses de edad, sufrió problemas respiratorios y finalmente fue transportada por vía aérea al Nicklaus Children’s Hospital para someterla a múltiples cirugías.

A Bright Future for Cassian Thanks to Genomic Testing

febrero 15, 2022 – Cassian experienced persistent pulmonary hypertension soon after he was born. Doctors transferred the ill newborn to Nicklaus Children’s Pediatric Intensive Care Unit to learn a genetic reason for his illness. Nicklaus Children’s is one of only two hospitals in Florida offering rapid whole genome sequencing (rWGS). Due to this, Cassian received an early diagnosis and did not experience the severe consequences associated with Wilson’s disease.

Taylor Outruns Heart Disease To Graduate College and Complete a Marathon

febrero 04, 2022 – Taylor was born at 28 weeks at St Mary's Hospital and was transferred to Nicklaus Children's hospital due to her patent ductus arteriosus. She was also diagnosed with tetralogy of Fallot, a combination of four heart defects that affects one in approximately 2,500 children. Today, Taylor is a healthy 21-year-old who has completed three half marathons and recently her first full marathon.

Paciente del mes: Nicolás

enero 24, 2022 – Nicolás y su familia buscaron ayuda y respuestas en Colombia, y después de múltiples opiniones, se le diagnosticó atrofia muscular espinal tipo 2 (SMA2). Si continuaba sin tratamiento, podría perder la movilidad en algunos músculos. Afortunadamente, Nicolás pudo visitar Nicklaus Children’s para recibir atención.

Gabrien's Story

enero 14, 2022 – During a routine ultrasound early in her pregnancy, Rebecca Jones and her husband Brent were devastated to learn there was something wrong with their baby’s heart. The expectant parents learned their baby, Gabrien, had a rare heart defect called transposition of the great arteries, a condition in which the two main arteries leaving the heart are reversed. Their obstetrician referred them to Dr. David Drossner, a pediatric cardiologist and director of outpatient cardiology at Nicklaus Children’s Hospital. 

Melany's Story

diciembre 29, 2021 – Melany began experiencing stomach pain and rapid weight loss, and later that year, she was diagnosed with Crohn's disease. A family friend recommended Dr. Crim from Nicklaus Children's Hospital, and Melany's mom decided to give her a visit. Melany has now reached a healthy weight and learned to manage her condition.

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