Historias inspiradoras de pacientes

Lea nuestras inspiradoras historias de los pacientes y familias que han sido tratados en Nicklaus Children's Hospital.

Si usted tiene su propia historia exitosa de paciente y desea compartirla para inspirar esperanza y ayudar a otras familias encontrar las respuestas que buscan para sus hijos, favor de contactarnos a: info@nicklaushealth.org.

Mientras lee estas historias inspiradoras, lo invitamos a ayudarnos a estar allí para los niños haciendo una inversión en su futuro a través de una contribución a la Fundación Nicklaus Children's Hospital.
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Piper’s Story: Navigating Life with Ulcerative Colitis

mayo 09, 2022 – Piper became incredibly sick in December of 2020. Just days after Piper turned 11, her parents were dismayed to learn that she had ulcerative colitis. The family went to see Dr. Muniz Crim, who, after explaining various treatment options, she suggested Remicade infusions would be the best treatment for Piper. 

Emet’s Brachial Plexus Injury Has Not Hindered His Dream of Becoming a Power Ranger

mayo 04, 2022 – At his birth, Emet’s shoulder became stuck in his mother’s pelvis, causing an injury to his brachial plexus, a network of nerves in the neck that control the arm. The family was referred to the Brachial Plexus and Peripheral Nerve Program, where Emet had surgery to repair the nerves. He continues his therapy and visits Dr. Berger for quarterly checkups. Emet dreams of becoming a Power Ranger when he is older. 

Mo's Story

abril 25, 2022

As a mother of three daughters, Moraima is no stranger to the wave of emotions that come with raising teenage daughters. That became especially important when she tragically lost her husband. Moraima’s youngest daughter was only eight at the time and had a difficult time coping with her father’s passing. This is when she reached out to Nicklaus Children’s Hospital to find support for herself and her daughter. 

Paciente del mes: JP

marzo 28, 2022

Cuando John y Jess se enteraron de que a su primogénito JP se le había diagnosticado en el útero una obstrucción de la vejiga que requería una cirugía antes del parto, su mundo se detuvo. Debido al diagnóstico, JP fue ingresado en la Unidad de Cuidados Intensivos Neonatales (NICU, por sus siglas en inglés) después del parto, donde pasó los primeros 6 meses de su vida.

Eric Undergoes Less-Invasive Heart Valve Replacement with FDA-Approved Harmony Transcatheter Pulmonary Valve

marzo 03, 2022 – Eric was born with critical pulmonary valve stenosis, a defect affecting the heart valve that connects the heart and lungs. He was only a week old when he underwent his first heart procedure, balloon dilation of a narrowed heart valve in his heart via cardiac catheterization. By his late teens, Eric was approaching the next step in his heart journey, a valve replacement for his pulmonary valve. 

Heidi’s Journey with Trisomy 18: Defying the Odds

marzo 02, 2022 – Heidi was born with Trisomy 18, a rare genetic condition that causes various developmental differences. Early on, her mother learned that Heidi would be born with several complex conditions, including a cleft lip and palate and a hole in her heart known as Ventricular Septal Defect (VSD). They were given a devastating prognosis in that there was a 90 percent chance she would not make it past her first birthday. However, Heidi beat those odds.

Paciente del mes: Alexandra

febrero 23, 2022 – Nacida prematuramente y con complicaciones cardíacas, Alexandra fue descrita como una bebé milagro. Con apenas unos meses de edad, sufrió problemas respiratorios y finalmente fue transportada por vía aérea al Nicklaus Children’s Hospital para someterla a múltiples cirugías.

A Bright Future for Cassian Thanks to Genomic Testing

febrero 15, 2022 – Cassian experienced persistent pulmonary hypertension soon after he was born. Doctors transferred the ill newborn to Nicklaus Children’s Pediatric Intensive Care Unit to learn a genetic reason for his illness. Nicklaus Children’s is one of only two hospitals in Florida offering rapid whole genome sequencing (rWGS). Due to this, Cassian received an early diagnosis and did not experience the severe consequences associated with Wilson’s disease.

Taylor Outruns Heart Disease To Graduate College and Complete a Marathon

febrero 04, 2022 – Taylor was born at 28 weeks at St Mary's Hospital and was transferred to Nicklaus Children's hospital due to her patent ductus arteriosus. She was also diagnosed with tetralogy of Fallot, a combination of four heart defects that affects one in approximately 2,500 children. Today, Taylor is a healthy 21-year-old who has completed three half marathons and recently her first full marathon.

Paciente del mes: Nicolás

enero 24, 2022 – Nicolás y su familia buscaron ayuda y respuestas en Colombia, y después de múltiples opiniones, se le diagnosticó atrofia muscular espinal tipo 2 (SMA2). Si continuaba sin tratamiento, podría perder la movilidad en algunos músculos. Afortunadamente, Nicolás pudo visitar Nicklaus Children’s para recibir atención.

Gabrien's Story

enero 14, 2022 – During a routine ultrasound early in her pregnancy, Rebecca Jones and her husband Brent were devastated to learn there was something wrong with their baby’s heart. The expectant parents learned their baby, Gabrien, had a rare heart defect called transposition of the great arteries, a condition in which the two main arteries leaving the heart are reversed. Their obstetrician referred them to Dr. David Drossner, a pediatric cardiologist and director of outpatient cardiology at Nicklaus Children’s Hospital. 

Melany's Story

diciembre 29, 2021 – Melany began experiencing stomach pain and rapid weight loss, and later that year, she was diagnosed with Crohn's disease. A family friend recommended Dr. Crim from Nicklaus Children's Hospital, and Melany's mom decided to give her a visit. Melany has now reached a healthy weight and learned to manage her condition.

Krue’s Battle With Crohn’s Disease

diciembre 20, 2021 – Krue began experiencing frequent high fevers and changes in his bowel habits when he was only 5 years old. After several tests and procedures were performed, Krue was diagnosed with Crohn’s disease.

Living With Hemophilia: Kevin's Story

noviembre 30, 2021 – Kevin was only two years old when he was diagnosed with hemophilia, a rare bleeding disorder that prevents the blood from clotting properly. He learned to give himself his medication, which he had to inject every other day. Today, Kevin says he owes his success to his family, his care team, and of course, himself for being his own advocate.

Paciente del mes: Gloria

noviembre 19, 2021

Bailar era la actividad favorita de Gloria, hasta que se le desarrolló un gran bulto en la columna vertebral, lo que dificultó el movimiento. Con el tiempo, y buscando apoyo para poder caminar, Gloria y su familia viajaron desde Haití al Nicklaus Children’s Hospital para recibir tratamiento.

Leonardo Finds His Voice

noviembre 08, 2021 – Leonardo’s vocal cords were fused from birth, causing him difficulty breathing with any type of common cold and preventing the child from speaking. Fortunately, his condition was treatable and involved a surgery to separate his fused vocal cords into two healthy vocal cords. 

Patient of the Month: Mariangel

octubre 26, 2021

Mariangel, born in a small town called Galerazamba, Colombia, was diagnosed in utero with cerebral palsy, a condition that affects mobility, balance and posture. After searching for answers for years, she finally found help after a Nicklaus Children’s Hospital pediatric orthopedic surgeon visited her hometown on a medical mission trip.

#Jaydenstrong: Two Nicklaus Children’s Nurses Find Hope and Healing for Their Ailing Son

octubre 22, 2021 – Dayse and Oscar Delgado are two registered nurses that worked at Nicklaus Children’s Hospital for more than 25 years providing care for many children. They had always had the role of care providers until September 2020, when their 2-year-old son Jayden experienced his first seizure. Suddenly they found themselves seeking out the services of the hospital where they had dedicated their careers.

A More Mobile Future for Jabarry

octubre 05, 2021 – Jabarry has always dreamed of playing soccer and basketball, but these activities were not possible due to his muscular limitations associated with cerebral palsy. He was a candidate for single event multilevel surgery (SEMLS), a surgical procedure that aims to correct many of these issues in one to two surgeries. After a successful surgery, Jabarry is now taking steps and has had the opportunity to kick a soccer ball and score a goal!

Patient of the Month: Daniela

septiembre 24, 2021

After noticing a small bump beginning to grow on his daughter, Daniel rushed to the emergency room at Nicklaus Children’s Hospital. After seeking treatment in their home country, the concerning bump grew and forced the family to journey back to Nicklaus Children’s Hospital for immediate treatment.

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