Parents Connect: Raising Happier, Healthier Kids

From Our Blog

Follow the Leader

Posted by: Cristina Edmunds
Published on: July 18, 2018

My child is the one having the surgery, and while I am allowed to be anxious and nervous, I really should be following his lead. If I act and look scared around him, he’ll pick up on that energy and feel like he’s supposed to be scared.  If I treat him like he’s “sick” all the time, he’s going to act “sick” all the time. 
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Fireworks Safety Tips for the Fourth of July

Posted by: Malvina Duncan
Published on: July 03, 2018

Watching the Fourth of July fireworks is a family tradition in South Florida and across the country. It's a time when parents and children share the "oohs" and "aahs" of these colorful displays that light up the night and celebrate our nation's history. It's also a time to play it safe, particularly when lighting sparklers or setting off Roman candles or other fireworks at home.
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Keeping Safe this Summer

Posted by: Jenise Subervi
Published on: July 02, 2018

Making sure that someone is always paying attention to the water or to the children is a huge way to avoid a drowning event. To help you with this, Nicklaus Children’s Hospital is distributing free Water Watcher badges to families in the community. 
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From Babbling to Words: How to Stimulate Your Child’s Language During the First Year of Life

Posted by: Jennifer Rodriguez Anzoategui
Published on: June 20, 2018

The first year of a child’s life is full of wonderful firsts: The first nerve wracking car ride home after the hospital, the first time he or she smiles, the first time a child actually sleeps through the night (yay) and, of course, the first time you hear your child’s voice. Your child will begin to communicate with you and express himself long before you even hear his first word.
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The Definition of Motherhood

Posted by: Cristina Edmunds
Published on: May 18, 2018

My family and I recently relocated to Birmingham, Al. One of the many things on my to do list was to find a counselor in this new city. In one of our first sessions together, she asked me this seemingly simple question. “What does it mean to you to be a mother?”  I started to answer by listing off things that I do as a mother, tasks that I assume as my son’s mother, but that’s not what she asked me. I had to stop, take a breath, and answer as honestly as I could.
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Caring for Rare

Posted by: Cristina Edmunds
Published on: February 27, 2018

In honor of Rare Disease Day 2018, I’m sharing with you my experience so far in raising a child with a rare diagnosis. So rare, in fact, he shares the diagnosis with approximately 50 other people worldwide. For us, this means many things physically, and emotionally. It requires patience, the ability to acquire and hold on to new knowledge, the openness to learn how to care for your child in a way that does not come naturally, and making peace with unknowns. Let’s dive in.
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From the Newsdesk

Ending the Diagnostic Odyssey: Whole Genome Sequencing (WGS) to Identify Genetic Determinants of Previously Undiagnosed Disease in Children
The goal of this collaborative research is to study human genomes in children with suspected congenital disease, multiple-congenital anomalies and/or multi-organ disease of unknown etiology by understanding the potential value of Whole Genome Sequencing (WGS) in establishing genetic diagnosis. The study will examine diagnosis rates, changes in clinical care as a result of a genetic diagnosis, health economics including potential cost-effectiveness of WGS and patient and provider experience with genomic medicine.
Rapid Whole Genome Sequencing (rWGS): Rapid Genomic Sequencing for Acutely Ill Patients and the Collection, Storage, Analysis, and Distribution of Biological Samples, Genomic and Clinical Data
This collaborative study seeks to provide rWGS as a research test to additional pediatric hospitals nationwide to assist in the rapid diagnosis of acutely ill children suspected of a genetic condition. The study will examine diagnosis rates, changes in clinical care as a result of a genetic diagnosis, and health economics including potential cost-effectiveness of rWGS.

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