Cystic Fibrosis Center
The Cystic Fibrosis Center at Nicklaus Children’s Hospital offers comprehensive family-centered care for children and adults with cystic fibrosis. Since 1993, the program has been awarded affiliate program accreditation status from the Cystic Fibrosis Foundation, ensuring access to the most current treatments and research findings.
The program serves as a referral center for cystic fibrosis patients identified by the state of Florida’s Newborn Screening Program. The center is equipped to provide prompt interventions with specialized therapies to provide newly diagnosed patients with immediate treatment, in order to prevent complications and promote health.
- Genetic testing
- Routine blood work
A Comprehensive Approach to Care
The program includes a comprehensive care team including:
- Cystic fibrosis coordinator
- Nurse practitioner
- Respiratory therapist
- Social worker
Programs and Services
The program includes comprehensive services, including:
- Outpatient care clinics
- Family education to support care
- Inpatient care
Education to Support Care
The Cystic Fibrosis Foundation assists patients and their families with education, disease management and supportive care.
The program participates in research protocols to advance care and understanding of cystic fibrosis.
About the Division of Pulmonology
Part of the U.S. News & World Report-recognized Division of Pulmonology at Nicklaus Children’s, the center is led by board-certified physicians trained in the care of patients with cystic fibrosis. The comprehensive care team is comprised of nurses, respiratory therapists, a dietitian, social worker and psychologist, who collaborative to provide treatment to minimize symptoms and complications.