Parent advocate are parents who, like you, have a child with a craniofacial difference. They will share with you their experiences and offer valuable advice. They are available for emotional support as well as information regarding insurance coverage, state laws that protect children with craniofacial conditions, parent support group meetings, craniofacial summer camp, and other needs you may have.
Patient advocates are past patients of the Craniofacial Center who can offer support and guidance to parents and patients. Their experiences as patients provide a valuable perspective to families learning to navigate the aspects of craniofacial differences.
Chad Perlyn, MD is a pediatric plastic surgeon and the Co-Director of the operating room at Nicklaus Children's Hospital.
Pediatric surgeon, Dr. Chad Perly, and Speech-Language pathologist, Renee M. Linenfelser, talk about the speech and feeding issues experienced by children with BWS.