Patient Success Stories

Read your heart-warming stories of hope in the face of despair, compassion in the face of suffering, courage in the face of adversity.

October Patient of the Month: Mariana

Meet our October Patient of the Month, Mariana. Mariana was born with Crouzon syndrome, a genetic disorder that prevents the skull from growing normally. For Mariana, it also caused difficulties with her breathing, but unfortunately, in Venezuela, where Mariana was born, they did not have the resources to treat her condition.

09/28/2017

Harper's Success Story

When Harper was diagnosed with Beckwith Wiedemann Syndrome shortly after birth, her family knew they wanted the best team possible for her tongue reduction surgery. Harper now leads a limitless life thanks to Dr. Chad Perlyn, an expert in treating macroglossia, and the Craniofacial Center at Nicklaus Children’s Hospital.

08/31/2017

A happy surgical outcome for family of infant with Beckwith Wiedemann Syndrome

Alyssa Caulley talks about her experiences at Nicklaus Children's Hospital, where she decided to have her daughter's surgery for Beckwith Wiedemann Syndrome (BWS).

08/29/2017

Baby Grace Beats All Odds Despite Rocky Start to Life

Grace was transferred to Nicklaus Children’s for what referring doctors believed were complications associated with neonatal sepsis. Soon after, the care team learned Grace had an enlarged failing heart due to hypoplastic left heart syndrome, a complex congenital heart defect that essentially means the baby was born with half a heart. 

08/28/2017

August Patient of the Month: Piero

Meet our August Patient of the Month, Piero. Born at just 27 weeks old, Piero had to be admitted into the NICU at the hospital where he was born and was intubated to allow his lungs to continue developing.

08/02/2017

Boy with Rare, Genetic Syndrome Returns Home to Trinidad After Complex Craniofacial Surgery

A team of surgeons from Nicklaus Children’s Hospital’s Craniofacial Center performed a complex reconstructive surgery on a seven year-old child that will improve his vision and ability to eat, as well as his appearance and overall quality of life.

07/19/2017

July Patient of the Month: Lacy

Meet our July Patient of the Month, Lacy. Lacy was only 2 years old when her parents noticed that something was wrong. They took her to various doctors to try to find what could be the cause, Lacy had an 8 cm. tumor in her brain, occupying most of the lower part of her head.

07/10/2017

A Limitless Life for Piero

Weighing only 2.9 pounds, Piero was intubated to help his developing lungs receive oxygen. The baby boy was transferred to Nicklaus Children’s Hospital, a referral center for some of the most critically-ill infants in the state with a Level III and II NICU, to undergo specialized care and evaluation.

06/08/2017

June Patient of the Month: Bi'Yanie

At a young age, Bi’Yanie was diagnosed with sickle cell, a blood disorder that causes the cells to take on a crescent or sickle shape and can lead to very painful episodes called crises. Today, Bi’Yanie is getting stronger by the day, thanks to the bone marrow transplant she received at Nicklaus Children’s Hospital.

06/06/2017

April Patient of the Month: Anabella

​Meet our April Patient of the Month, Anabella. During an early check-up, Anabella was diagnosed with a congenital heart condition called atrial septum defect, or a hole in her heart.

04/10/2017

A Healthy Life Ahead for Elias

The family shared video clips of the quirky movements with Elias' pediatrician. The doctor immediately sent them to the nearest emergency room, where they ran a number of tests. They soon learned Elias was suffering from seizures due to cortical dysplasia, a congenital malformation in the brain which can lead to pediatric epilepsy conditions.

03/23/2017

Devon, Determined to Stand

At around 6 months of age, Devon's mother started noticing that he wasn't meeting his developmental milestones. By the time he was 2 years old, he was diagnosed with a rare form of epilepsy and his muscle development was impaired. Surgery, physical therapy, and Devon's own determination brought his quality of life beyond what his mother had initially thought possible.

03/15/2017

Hallie Travels Around the World for a Cure

Hallie McKeithen traveled all the way from China to undergo surgery at Nicklaus Children's Brain Institute to treat her seizures. Thanks to the treatment received, Hallie is now seizure free. 

03/14/2017

March Patient of the Month: Milagros

At 12 years old, Milagros was diagnosed with lupus, an autoimmune disease that causes the body to attack itself. In Milagros’ case, the disease attacked her kidneys, and a few years after her diagnosis, her kidneys completely shut down.

03/08/2017

Lukas's Success Story

As a newborn, Lukas was in cardiac arrest and brought to Nicklaus Children's Hospital, where he underwent open heart surgery and placed on a Cardiopulmonary Bypass Machine, which stabilized his condition.

02/07/2017

Young Girl Born with Birthmark on Her Lip has Surgery that Will Change Her Life

Just a few weeks after Brianna was born, her mother noticed a red growth on her daughter’s upper lip.  Her pediatrician referred the family to specialists who diagnosed the growth as an Infantile Hemangioma. On December 7th, Dr. Chad Perlyn of Nickalus Children's Hospital, removed the hemangioma.

12/14/2016

November Patient of the Month: Andres

We introduce you to our Patient of the Month, Andres. When he was in high school, Andres was a wrestler, competing at some of the highest levels in the state. Then, in his senior year, the unimaginable happened; Andres suffered injuries that made it impossible for him to continue wrestling.

11/21/2016

Jose's SUPER Experience

From the very moment the Genes family arrived at Nicklaus Children’s for treatment until Jose Jr. was cleared to return home, Genes says the hospital made the experience for his son and family a positive one.  

11/10/2016

Soaring Through Life Seizure Free

At two month’s old, Hannah underwent brain surgery (a temporal, occipital parietal resection) at Nicklaus Children’s Hospital to relieve her of her constant seizure activity after medication did not provide relief. This rare procedure involves removing the affected part of the brain for patients with severe epilepsy disorders. The surgery proved to be a success. She was completely off medications by the age of one and has been seizure free since the operation.

11/04/2016

A Helping Hand for Hayden

When Hayden Thomas was two-and-a-half years-old, Dr. Aaron Berger, Pediatric Plastic Surgeon at Nicklaus Children's Hospital who specializes in hand surgery,  introduced the Thomas family to 3D printing technology as an option to support the child’s progress and help prepare him for a prosthetic in the future.  

11/02/2016

In the Local News

It may sound like sci-fi, but the new way to treat a brain tumor is to vaporize it

Miami Herald. — The procedure doesn’t require surgery; instead, it uses intense heat to pinpoint and destroy the tumor. 

Hospital conducts study into incision-less procedure to treat centrally located brain tumor

Local 10 News. — A multi-disciplinary team at Nicklaus Children's Hospital is conducting an FDA approved study into an incision-less procedure to treat centrally located brain tumors. 

Nicklaus Children's doctors treat skull deformity in babies that doesn't allow the brain to grow properly

Local 10 News. — Ellis underwent a procedure at Nicklaus Children's Hospital to correct the rare condition, called metopic craniosynostosis, where the bones in the skull fuse together.