Patient Success Stories

Read inspiring stories of hope from patients and families treated at Nicklaus Children's Hospital.

Have your own Patient Success Story to share? If you’d like to share your Nicklaus Children’s story to inspire hope, and help other families find answers to questions they’re seeking for their child, please contact us at: info@nicklaushealth.org.

The Muñoz Family Thank You Letter

My first impressions: the doctor was someone with a clear vision, extremely knowledgeable, caring, and well liked and respected by your colleagues.  Most importantly, someone willing to coordinate care across the country for Olivia. Read the Muñoz family's thank you letter to our neurosurgery team.

04/05/2019

March Patient of the Month: Helia

When Helia was 12 years old, her mother began to notice she was always very thirsty and drinking more water than usual. It got to the point that Helia was losing sleep due to all the weight she gained, so her mother decided to consult with a specialist.

03/29/2019

Saving Teegan: From Minnesota to Miami in Search of Hope

Though Teegan grew only a few pounds during her first three months, a stark contrast to her twin sister, the critically ill baby stunned her family and pediatrician with each day she survived. Her will to live spurred her family to search for a miracle.

03/26/2019

Peyton's Airway Reconstruction Journey

Peyton was born with a congenital heart defect that led her to spend months in the Neonatal Intensive Care Unit. Like many infants who are born premature and with congenital health issues, Peyton had to undergo a tracheostomy to help her breathe and eat.
Thanks to advances in medicine, Peyton recently underwent airway reconstruction surgery, performed by pediatric otolaryngologist Dr. Brian Ho, and can now breathe on her own.

03/20/2019

Willow's Journey to a Healthy Heart

"Hearing about any type of unexpected diagnosis can be incredibly overwhelming for parents, let alone an unusual or rare abnormality like a tumor in their child's heart," said Dr. Guleserian. "Thankfully we were able to provide reassurance to the Albans because of our program's experience in treating these types of abnormalities." Willow's one special request for her surgery was to take her plush bunny into the operating room. 

02/21/2019

February Patient of the Month: Chad

While on a father-son fishing trip in the Florida Keys, Chad, 3, was playing and swinging from the rope of a nautical wood pole when the 200-pound object came crashing down onto his chest, sending him into a state of cardiac arrest.



02/05/2019

A Child's Journey - Olivia's Story

Olivia was born with a congenital heart defect, her first open heart surgery was scheduled just days after she took her first breath. Olivia's parents placed their trust in the hands of The Heart Program at Nicklaus Children's Hospital.

02/04/2019

Experts at Nicklaus Children's Hospital help dancers get safely back on their feet

Dancing is a beautiful form of expression but it can be physically taxing on the body, especially for children and adolescents. The Sports Health Center at Nicklaus Children's helped Amber recover from her injury and return to dancing. In fact, Amber had the opportunity to dance in the Latin Grammy Awards last fall. 

02/04/2019

South Florida surgeon helps children with airway disorders breathe easy

According to the World Health Organization, an estimated 15 million babies are born prematurely every year. Among the many complications these little ones face are airway disorders. Thanks to airway reconstruction performed by Dr. Brian Ho, little Elijah is able to breathe on his own without the support of a medical device.

02/01/2019

January Patient of the Month: Layla

When Layla was 5, she came to Nicklaus Children's Hospital with a severe case of scoliosis. To help straighten her spine, Layla spent time in halo gravity traction. While her mom returned home to Gainesville for work and school, the nurses at Nicklaus Children's took care of Layla, acting as substitute mothers and making sure she was well cared for.

01/02/2019

December Patient of the Month: Charlie

After surviving a high-risk pregnancy with a set of twins, the Strombom’s were faced with yet another complication. Their third child, an unborn baby named Charlie, was diagnosed with a congenital pulmonary airway malformation (CPAM) and underwent two in utero interventions to allow for a full and healthy gestation period. Once delivered, the LifeFlight team from Nicklaus Children’s Hospital was on stand-by to transport Charlie from West Palm Beach to Miami.



12/03/2018

Logan's Journey with Congenital Diaphragmatic Hernia

Logan Perry was born with congenital diaphragmatic hernia, a rare birth defect in which te diaphragm does not develop properly. Thanks to the experts at Nicklaus Children's Hospital, Logan had corrective surgery and is developing into a rambunctious toddler. 

11/30/2018

October Patient of the Month: Gabriela

Following an emergency C-section, Gabriela’s mother, Katherine, was shocked to see that her new baby was missing part of her face. Gabriela was born with a cleft lip and palate. Katherine researched for hours to find the best doctors to fix her daughter’s condition and came upon the craniofacial team at Nicklaus Children’s Hospital.

10/01/2018

Li Travels all the way from Shanghai to Nicklaus Children’s for Management of his Complex Heart Condition

Li Hongyang, 37, traveled all the way from his hometown of Shanghai China to find the best possible care for his complex heart condition. What he did not expect is that he would receive his lifesaving treatment at a children’s hospital.
 

09/24/2018

Bianca’s Journey to Being Pain Free

Bianca suffered from pain and a severe bowleg deformity for many years as a result of Blount’s disease, a growth disorder that affects the bones in children and young adults.

09/24/2018

Mason's Story: Nicklaus Children's Makes the Difference for Child with Traumatic Brain Injury

Seeing a baby boy intubated, hooked up to a maze of machines, and with IV pumps snaking out of his tiny arms is an incredibly heartbreaking and terrifying experience. The Nicklaus Children’s staff was not only caring and friendly, but knowledgeable and explained everything to us in detail. Meeting the neurosurgery team brought us great comfort because they were confident and calm—they won our trust immediately.

09/21/2018

Oscar Uses His Experience to Help Others Prevent Pain

Oscar, 20,  was born with Sickle Cell Disease, a condition that affects red blood cells (sickle cell anemia) and blockage of blood flow causing pain. The pain is often so severe; patients suffer painful bouts known as sickle cell crisis and often require hospitalization.

09/21/2018

Infant flown from Puerto Rico days after Hurricane Maria for Lifesaving Surgery

Naialee Perez had just given birth to her first child, a baby boy named Liam, when a category five hurricane was making its way towards her hometown in the island of Puerto Rico. Liam was on a ventilator and undergoing treatment for a congenital heart defect in Hospital del Niño in San Juan while those on the island prepared for what would become one of the most catastrophic hurricanes in its history.

09/19/2018

September Patient of the Month: Mateo

When Mateo was just two years old, his parents were shocked to discover that their toddler developed leukemia. They met with the hematology and oncology specialists at Nicklaus Children’s Hospital and began a treatment protocol that brought Mateo back to health—along with some entertainment from his spirited little sister! Mateo, now 10, is a healthy, typical kid who loves running around with his friends.

09/04/2018

August Patient of the Month: Luife

While he was still inside his mother’s womb, Luife was diagnosed with transposition of the great arteries, a congenital heart defect. Shortly after birth, Luife was taken by ambulance to the cardiac team at Nicklaus Children’s. The pediatric cardiology team took Luife’s heart apart, piece by delicate piece, and successfully, put it back together. Today, Luife is a healthy, active and outgoing 8-year-old boy who wears his “Scar of Honor” with pride. 

08/17/2018

Nicklaus Children's Hospital Patient Success Stories rss

From the Newsdesk

Friends Through the Fight: 2 South Florida girls fighting same form of rare bone cancer become friends
Two South Florida girls were diagnosed with the same rare form of bone cancer. They didn’t know each other when they started treatment but became friends through the fight. 7’s Alex de Armas shares their story.
South Florida baby born with rare skin disorder
When Carolina Fenner went into labor in March, she was anticipating the joy of welcoming her baby girl, already named Luna, into the world. But moments after the birth, her excitement was tempered by confusion, a large birthmark was covering the majority of little Luna's face.
Repair of Truncus Arteriosus, a Single Center Experience: 1995-2019
The Heart Program at Nicklaus Children’s Hospital remains dedicated to providing the very best and safest experience for patients undergoing congenital heart surgery. This report will review the program’s 24-year surgical experience in repairing children with a diagnosis of truncus arteriosus.
2017 Annual Report
2017 was another remarkable year for Nicklaus Children's Health System. We forged new national collaborations to expand service offerings and innovation. We weathered an intense storm season, providing relief for families requiring medical care during and in the aftermath of major hurricanes. And we unified our organization under a new health system name, while continuing to expand our footprint in the region through our growing ambulatory network. Click to read the full 2017 report to the community.
Colorectal Center goes on mission trip to Peru
Juan Calisto, MD, and Raquel Pasarón, APRN, from the Nicklaus Children’s Colorectal Center care team recently participated in a mission trip to Peru to deliver collaborative care to 19 children affected by complex colorectal conditions, as well as provide education and onsite training of local pediatric surgeons. Nicklaus Children’s was one of only four organizations invited to participate in the program, which was sponsored by Red De Corazones and the Instituto Nacional de Salud del Niño in Lima, Peru.