Patient Success Stories

Read inspiring stories of hope from patients and families treated at Nicklaus Children's Hospital.

Have your own Patient Success Story to share? If you’d like to share your Nicklaus Children’s story to inspire hope, and help other families find answers to questions they’re seeking for their child, please contact us at: info@nicklaushealth.org.


As you read these inspiring stories, we invite you to help us be there for the children by making an investment in their future through a contribution to Nicklaus Children's Hospital Foundation.


 

Ortho Athlete Spotlight: Motocross Racer Colt Golembeski

At only 12 years of age, Colt is already an accomplished motocross racer. In January 2020, Colt went from being at the top of his game to enduring a devastating injury at a moment's notice. During a training event in Georgia, Colt jumped off the side of his motorcycle and felt his knee pop. He had torn his ACL.

Colton's Success Story

Colton has been a fighter from early on. When his mother was four months pregnant, Colton’s surgery journey began. Colton his first fetal surgery for ureteric atresia and placement of a bladder stunt during gestation. At only 7 days old he had a dialysis catheter placed and began treatment at Nicklaus Children's Hospital

Allison's Story: Top Gymnast Bounces Back After Injury

Allison Roca is among the top 100 gymnasts in the nation for her age division. Her rigorous routine came to a halt in the summer of 2020 while performing a stunt known as a front tuck. When she landed with her knee hyperextended her mother almost immediately knew that something was not right. Allison was in a lot of pain.

Almudena's Success Story

Almudena was only two years old when she was diagnosed with a cancerous brain tumor. Her mother Claudia first noticed there was something wrong when Almudena was experiencing excessive thirst, was having difficulty seeing, and was losing weight. She was referred to Nicklaus Children’s Hospital where she underwent chemotherapy for three months but the tumor was still growing and it needed to be removed.

Matthew’s Epilepsy Success Story

My son, Matthew Reyes, was diagnosed with epilepsy when he was three and a half months old. To control his seizures, Matthew tried 11 different medications and was placed on the ketogenic diet. Unfortunately, none were successful in minimizing his seizures on a daily basis. This is called intractable epilepsy.

Patient of the Month: Lavondre

At three weeks old, baby Lavondre was diagnosed with Ventricular Septal Defect (VSD), which means he had a hole in the wall that separates the right and left lower chambers of the heart, and he needed surgery to survive.

A New Beginning for Victoria

A move to Miami in 2019 led to a happy transformation for little Victoria Carias and her parents. Victoria, who was born prematurely in 2015, still had the tracheostomy tube that was placed in her neck to support breathing when she was an infant. Thanks to the Airway Program at Nicklaus Children's Victoria successfully went through a trach tube removal (decannulation), which would make a big difference in her life.

Madeleine Becomes the First Patient Cured of Hypothalamic Obesity Using Novel Focused Ultrasound Treatment at Nicklaus Children's Hospital

At only six months old, Madeleine Morris was diagnosed with hypothalamic hamartoma, a rare, benign brain tumor that can cause various symptoms including hormone imbalances, epilepsy, behavioral disorders and, although rare, hypothalamic obesity. In 2017 Nicklaus Children's became the first hospital in the world to perform a focused ultrasound surgery on a pediatric patient with a hypothalamic hamartoma tumor. The entire family, including father  and her sister, flew to Miami from their home in London, England in 2019 for the life-changing procedure.

Francesca: Born August 19, 2019 at Nicklaus Children's Hospital

At their 20-week anatomy scan, Olivia Bittles and her husband Bobby learned their unborn baby had esophageal atresia, a genetic condition in which the esophagus does not connect directly to the stomach. This news came as a shock.

Adrien: First Baby Born at Nicklaus Children's Hospital

Emily Granados was 20 weeks pregnant with her third child when she found out something was wrong with his little heart. 

Patient of the Month: Zuri

When Zuri was only a couple weeks old, her parents received a call that would change their lives forever.  Zuri was diagnosed with cystic fibrosis, but she received the treatment she needed to go on to live a healthy, happy life.

Brianna's Story

Brianna “Brie" Mestrovich was only 9 years old when she was diagnosed with pediatric cancer. The West Palm Beach native was referred to the Nicklaus Children's Palm Beach Gardens Outpatient center for an MRI because she was experiencing recurrent headaches that did not go away after several months.

Fetal care program helps mothers, babies with high-risk births

Kristen McManus was one of the first mothers to deliver her baby at Nicklaus Children’s Hospital, under the care of the Fetal Care Center, a program that provides care to infants who will need access to medical care immediately after birth.

Sebastian's Fight

Sebastian was only 11 years old when he was diagnosed with a brain tumor, hydrocephalus and a teratoma. His mother Martha says she was shocked to learn her otherwise healthy son began experiencing headaches.

Jayden Hong: A Gastroenterology Success Story

Jayden Hong’s gastrointestinal symptoms started when he was just a few months old.
“He would wake up around 4 a.m. every night choking. It was a constant checking on him at night and very stressful. We put him on reflux medicine, but it just kept getting worse,” said Andrea Ramos. “He would eat and food would get impacted.”

Patient of the Month: Tyler

When Tyler began to complain about pains in his shin, his dad thought it was a simple soccer injury. After multiple complaints, Tyler’s dad began to take it more serious. Following a series of exams and an osteosarcoma diagnosis in Jamaica, Tyler was referred to Dr. Temple, orthopedic surgeon at Nicklaus Children’s Hospital for limb saving surgery.

Jarel Santiago: A Cardiac and ENT Success Story

Jarel was born healthy, according to the doctors, but in the days following his birth, Maria Lourdes and her husband began having concerns about Jarel’s breathing. His respiration was rapid and he seemed to have trouble breathing.

Madison Stays on Track Thanks to Virtual Appointments with Nicklaus Children’s Pediatric Specialists

Like many parents who have had to adjust to a new normal due to the worldwide COVID-19 pandemic, Joanna Glazer worried how her daughter Madison Glazer, age 10, would stay on track with her studies and therapy sessions with social distancing.

Patient of the Month: Juan Diego

After a completely normal pregnancy in Nicaragua, Juan Diego was born with blue skin and shortness of breath. He was immediately diagnosed with a congenital heart disease and given a 50% chance of life if mom and dad didn’t seek treatment. Check out how far Juan Diego has come with the help of the Nicklaus Children’s Hospital Heart Program!

Cardiac Catheterization Procedure Helps Jackson's Start to Life

Baby Jackson, born after only 24 weeks of gestation, was very fragile and required oxygen around the clock. His parents were referred to Nicklaus Children's Hospital to repair his patent ductus arteriosus (PDA) a congenital heart defect that occurs commonly in premature infants.

Nicklaus Childrens Hospital Patient Success Stories rss