Their Medical Mystery Solved, a Family Helps Create Awareness of Beckwith-Wiedemann Syndrome

Crystal with her husband and 3 daughters.
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Harper's Success Story

August 31, 2017 – When Harper was diagnosed with Beckwith Wiedemann Syndrome shortly after birth, her family knew they wanted the best team possible for her tongue reduction surgery. Harper now leads a limitless life thanks to Dr. Chad Perlyn, an expert in treating macroglossia, and the Craniofacial Center at Nicklaus Children’s Hospital.

A happy surgical outcome for family of infant with Beckwith Wiedemann Syndrome

August 29, 2017 – Alyssa Caulley talks about her experiences at Nicklaus Children's Hospital, where she decided to have her daughter's surgery for Beckwith Wiedemann Syndrome (BWS).

Beckwith-Wiedemann Conference Held at Nicklaus Children’s Hospital

August 30, 2018 – Families from all around the world traveled to Nicklaus Children’s Hospital in July for an educational conference about Beckwith-Wiedemann Syndrome (BWS), a congenital, genetic condition that can cause premature birth, hypoglycemia, abdominal wall defects, abdominal malignancies and macroglossia (enlarged tongue).

South Florida surgeon helps fix craniofacial deformities in babies

July 07, 2016 – Local 10 News reports on Dr. Perlyn's complex surgeries to treat babies born with rare craniofacial deformities: Pierre Robin Sequence and Beckwith-Wiedemann syndrome.