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Center for Beckwith-Wiedemann Syndrome

The Center for Beckwith-Wiedemann Syndrome at Nicklaus Children’s Hospital is one of the leading programs in the world for the treatment of children with Beckwith-Wiedemann syndrome.  The center offers a comprehensive, multidisciplinary approach to care that addresses the full scope of needs for families of children born with this congenital disorder.

Specialized Treatment for BWS Syndrome

The center is one of the few in the nation with a long-standing interest and experience in evaluating and caring for children with BWS.  Services include:

  • Pre-natal diagnosis of BWS
  • Surgical treatment of macroglossia (enlarged tongue) 
  • Treatment and therapy for BWS symptoms
  • Ongoing screening protocols

And other medical team members devoted to caring for children with BWS. 

Latest News

South Florida surgeon helps fix craniofacial deformities in babies

Local 10 News reports on Dr. Perlyn's complex surgeries to treat babies born with rare craniofacial deformities: Pierre Robin Sequence and Beckwith-Wiedemann syndrome.


For more information about the Center for Beckwith-Wiedemann Syndrome at Nicklaus Children's Hospital, please call (305) 278-5923 or e-mail Kristen Burr, BWS coordinator at

Service Locations

Nicklaus Children's Hospital Main Campus & Emergency
3100 SW 62nd Avenue
Miami, FL 33155
Phone: 305-666-6511
Toll-free: 1-800-432-6837

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