Non-Syndromic Craniosynostosis

Also known as: raniosynostosis.

What is non-syndromic craniosynostosis?

When an infant is born, the bones that make up the skull are typically not joined together fully. Craniosynostosis occurs when the skull bones are joined together prematurely. Non-syndromic craniosynostosis means that there is a fusion of skull bones in the head early on that is not associated with a known syndrome.

What causes non-syndromic craniosynostosis? 
The cause of non-syndromic craniosynostosis is typically unknown, though genetic factors may play a role.

What are the symptoms of non-syndromic craniosynostosis? 
Typically, a slightly unusual appearance of the head or face are the only symptoms of non-syndromic craniosynostosis. 

What are non-syndromic craniosynostosis care options?
Many children with non-syndromic craniosynostosis require no treatment. In some cases, surgery is required to treat the complications related to the disease.

Upcoming Events

Beckwith-Wiedemann Syndrome (BWS) Family Conference

Nicklaus Children’s Hospital invites you to attend a conference designed to provide individuals with Beckwith-Wiedemann Syndrome (BWS) and their family’s up-to-date information about the possible aspects of BWS and their management. 

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Reviewed by: Mislen S Bauer, MD

This page was last updated on: 4/6/2018 8:33:32 AM

From the Newsdesk

March Patient of the Month: Theodore
03/15/2018 — Meet our March Patient of the Month, Theodore. Theodore was diagnosed with cleft palate, cleft lip and a heart problem when he was only 18 weeks old. After he was born, Theodore had to be admitted into the NICU to be able to perform the necessary surgeries for him to live a healthy life.
March Patient of the Month: Theodore
03/15/2018 — Meet our March Patient of the Month, Theodore. Theodore was diagnosed with cleft palate, cleft lip and a heart problem when he was only 18 weeks old. After he was born, Theodore had to be admitted into the NICU to be able to perform the necessary surgeries for him to live a healthy life.