Non-Syndromic Craniosynostosis

Also known as: raniosynostosis.

What is non-syndromic craniosynostosis?

When an infant is born, the bones that make up the skull are typically not joined together fully. Craniosynostosis occurs when the skull bones are joined together prematurely. Non-syndromic craniosynostosis means that there is a fusion of skull bones in the head early on that is not associated with a known syndrome.

What causes non-syndromic craniosynostosis? 
The cause of non-syndromic craniosynostosis is typically unknown, though genetic factors may play a role.

What are the symptoms of non-syndromic craniosynostosis? 
Typically, a slightly unusual appearance of the head or face are the only symptoms of non-syndromic craniosynostosis. 

What are non-syndromic craniosynostosis care options?
Many children with non-syndromic craniosynostosis require no treatment. In some cases, surgery is required to treat the complications related to the disease.

Reviewed by: Mislen S Bauer, MD

This page was last updated on: 4/6/2018 8:33:32 AM

From the Newsdesk

October Patient of the Month: Gabriela
Following an emergency C-section, Gabriela’s mother, Katherine, was shocked to see that her new baby was missing part of her face. Gabriela was born with a cleft lip and palate. Katherine researched for hours to find the best doctors to fix her daughter’s condition and came upon the craniofacial team at Nicklaus Children’s Hospital.
October Patient of the Month: Gabriela
Following an emergency C-section, Gabriela’s mother, Katherine, was shocked to see that her new baby was missing part of her face. Gabriela was born with a cleft lip and palate. Katherine researched for hours to find the best doctors to fix her daughter’s condition and came upon the craniofacial team at Nicklaus Children’s Hospital.