Join us to learn from expert physicians and health care professionals about several topics that are important to Neurofibromatosis patients, families, and caregivers.
Breakfast and Lunch will be provided.
Please call 305-663-8554 or 305-663-8595 for registration information.
|8 a.m. - 9:30 a.m.
||Registration & Breakfast
|9 a.m. - 9:15 a.m.
||Mislen Bauer, MD, Director, Neurofibromatosis Center, Nicklaus Children’s Hospital
“Neurofibromatosis Center at Nicklaus Children’s Hospital”
|9:15 a.m. - 9:30 a.m.
||Katherine Schain, MS, CGC, Genetic Counselor, Nicklaus Children’s Hospital
"Genetics of Neurofibromatosis"
|9:30 a.m. - 10:30 a.m.
||Dr. Maria Fernanda Lengua, Neurologist, Colombia, South America
“Learning Issues in Children with Neurofibromatosis”
|10:30 a.m. - 10:45 a.m.
|10:45 a.m. - 11:15 a.m.
||Elsa Martinez, MS, CF-SLP
“Understanding Your Child’s Unique Developmental Profile of Strengths and Weaknesses”
|11:15 a.m. - 11:45 a.m.
||Cristina Fernandez-Valle, PhD, University of Central Florida
“Update on Treatment for Neurofibromatosis
|11:45 a.m. - 12:15 p.m.
||Dr. Juan Sebastian-Botero, Clinical Geneticist, Colombia, South America
“Preliminary Results of Studies Examining Learning Issues in Children with NF”
|12:15 p.m. - 1 p.m.
||Mislen Bauer, MD, Director, Neurofibromatosis Center
Nicklaus Children’s Hospital
|1 p.m. - 2 p.m.
|2 p.m. - 4 p.m.
Teen Group Meeting
Facilitator: Carmen Arango, MS, CHT, ADR
This event is sponsored in part by the Children’s Tumor Foundation (CTF), a nonprofit organization dedicated to finding effective treatments and supporting individuals worldwide living with neurofibromatosis. For more information, please visit www.ctf.org. The Teen Group Meeting is sponsored by the GENES Foundation, an organization that provides the emotional and physical support for neurofibromatosis patients and their families. For more information, please visit www.genesfoundation.com.