Also known as: synostosis
What is craniosynostosis?
Most babies are born with a skull made up of several bony plates that are not yet fused together by bone, but are joined together by soft tissue. These lines of soft tissue are called “sutures” or “suture lines”; they allow the head to be flexible and mold as it passes through the birth canal. They also let the head and brain grow and develop after birth. These sutures normally “close” with bone by the time the infant is 2-3 years of age. When a baby has craniosynostosis, however, one or more of the bones of the skull are joined together by bone prematurely, which lead to problems depending on which, and how many sutures may have closed early.
What causes craniosynostosis?
The cause of craniosynostosis is sometimes not known. In some cases, it may be a genetic disorder inherited from the parents. Other times, craniosynostosis is a secondary sign of a separate genetic disease.
What are the signs and symptoms of craniosynostosis?
The physical signs of craniosynostosis are usually noticeable at birth, but sometimes can only become apparent during the first months of life. Usually signs include a misshapen skull or a hard ridge can be felt where the bones come together. The baby’s head may also not grow normally (or at all) as your baby ages.
What are craniosynostosis care options?
The mildest forms of craniosynostosis may not require surgery and your physician might recommend a specially molded helmet which can help to reshape your baby’s head. For most babies however surgery will be required to reopen the suture(s) of the skull, allowing room for the growing brain and also improve the overall appearance of the baby’s head
Reviewed by: Parul B Jayakar, MD
This page was last updated on: June 21, 2019 02:17 AM
Date: Friday, July 10, 2020
Nicklaus Children’s Hospital invites you to attend a conference designed to provide individuals with Beckwith-Wiedemann Syndrome (BWS) and their families with up-to-date information about the possible aspects of BWS and their management.
Weekly Support Programs
This event has been postponed. Please join us for an intimate conversation on personalized medicine and preconception screening, with special speakers Vladi Yurovsky, Daria Salyakina, Phd, and Debbie Wasserman, MS. Come get screened for Jewish genetic diseases!
This program is provided by a certified yoga instructor. It offers children and teens the following benefits: managing stress through breathing, self-awareness, healthy movement and meditation. Yoga also promotes strength, flexibility, coordination and body awareness.