Also known as: Gorham Syndrome
What is Gorham Syndrome?
Gorham syndrome is a rare condition involving gradual bone loss that can affect one or more bones.
The cause is unknown and clinical onset is from childhood to young adulthood.
Associated symptoms include:
- hemangiomas on one side of the body that can affect one or several contiguous bones
- massive bone destruction
- bone fibrosis
- diffuse muscle atrophy
Superficial hemangiomas may not always be present. When the rib cage is involved, it is usually fatal.
This page was last updated on: 3/23/2018 1:55:20 PM
From the Newsdesk
In observance of vascular birthmarks awareness month, The International Birthmarks Institute at Nicklaus Children’s Hospital held its first Vascular Birthmarks Conference at the hospital’s main campus on May 5th. The event brought together patients, families and medical professionals representing a range of specialties to present the latest in diagnosis, treatment and research related to birthmarks.
Just a few weeks after Brianna was born, her mother noticed a red growth on her daughter’s upper lip. Her pediatrician referred the family to specialists who diagnosed the growth as an Infantile Hemangioma. On December 7th, Dr. Chad Perlyn of Nickalus Children's Hospital, removed the hemangioma.