Gorham Syndrome

Also known as: Gorham Syndrome

What is Gorham Syndrome?

Gorham syndrome is a rare condition involving gradual bone loss that can affect one or more bones.
The cause is unknown and clinical onset is from childhood to young adulthood.
Associated symptoms include:
  • hemangiomas on one side of the body that can affect one or several contiguous bones
  • massive bone destruction
  • bone fibrosis
  • osteoporosis
  • fractures
  • diffuse muscle atrophy
Superficial hemangiomas may not always be present. When the rib cage is involved, it is usually fatal.

This page was last updated on: 10/31/2017 11:49:28 AM

From the Newsdesk

Young Girl Born with Birthmark on Her Lip has Surgery that Will Change Her Life
12/14/2016 — Just a few weeks after Brianna was born, her mother noticed a red growth on her daughter’s upper lip.  Her pediatrician referred the family to specialists who diagnosed the growth as an Infantile Hemangioma. On December 7th, Dr. Chad Perlyn of Nickalus Children's Hospital, removed the hemangioma.
Dr. Ana Duarte Named 2016 Physician of the Year by the Vascular Birthmarks Foundation
10/13/2016 — The Vascular Birthmarks Foundation presented Dr. Ana Duarte with a 2016 Physician of the Year Award for outstanding service in the diagnosis and treatment of children affected by a vascular birthmark.