Also known as: Craniofacial dysostosis
What is Crouzon syndrome?
Crouzon syndrome is a rare disorder that is present at birth. It is characterized by the seams between a baby’s soft skull bones closing early, which causes the face and eye sockets to develop incorrectly.
What causes Crouzon syndrome?
Crouzon syndrome is an inherited disorder that is passed along from parents to their children.
What are the symptoms of Crouzon syndrome?
The physical symptoms of Crouzon syndrome can include an abnormal head shape, wide-set and bulging eyes, and an underdeveloped midface. Vision problems, hearing problems, difficulty breathing and dental issues are also common.
What are Crouzon syndrome care options?
Treating Crouzon syndrome often takes a variety of different treatments and therapies. Surgery to correct the different abnormalities is common, and assistance with breathing can be needed. Vision correction is performed when necessary and children will also often require therapy to correct speech or hearing problems.
Reviewed by: Saoussen Salhi, MD
This page was last updated on: 1/11/2018 1:58:49 PM
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From the Newsdesk
Children who receive care at the Craniofacial Center at Nicklaus Children’s, along with their families, enjoyed an afternoon of red carpet glamour and photo booth fun on April 28.
Meet our March Patient of the Month, Theodore. Theodore was diagnosed with cleft palate, cleft lip and a heart problem when he was only 18 weeks old. After he was born, Theodore had to be admitted into the NICU to be able to perform the necessary surgeries for him to live a healthy life.