We use cookies to personalize content and ads, to provide social media features, and to analyze our traffic. By continuing to use our site, you accept our use of cookies. Website information disclaimer.

close
close
go to home page.
callCall
Search
Menu
go to home page.
1-800-432-6837 English Careers For Healthcare Professionals Donate Contact Us
1-800-432-6837
Make Appointment
  • Medical Services
    Brain Institute Cancer & Blood Disorders Heart Institute Orthopedics & Spine Surgery Programs and Clinics See All Medical Services
    Brain Institute Home
    Conditions We Treat
    Specialist Programs and Clinics
    Diagnostics and Treatment
    News
    Meet the Team
    Patient Stories
    Events
    Videos
    Request an Appointment
    Cancer & Blood Disorders Home
    Conditions We Treat
    Specialist Programs and Clinics
    Diagnostics and Treatment
    Support Services and Programs
    Research & Reports
    News
    Videos
    Patient Stories
    Make an Appointment
    Heart Institute Home
    Conditions We Treat
    Diagnostics and Testing
    Specialist Programs and Services
    Treatments and Procedures
    Free EKG Test
    Congenital Heart Surgery Real Time Outcomes ℠
    News
    Videos
    Meet the Team
    Patient Stories
    Request an Appointment
    Orthopedics & Spine Surgery Home
    Conditions We Treat
    Specialist Programs and Services
    EOS (full-body low radiation 3D imaging)
    News
    Videos
    Meet the Team
    Patient Stories
    Request an Appointment
    Programs & Clinics Home
    Beckwith-Wiedemann Syndrome Center
    Colorectal Center
    Diabetes Treatment Center
    Eating Disorders Program
    Epilepsy Center
    Headache Program
    IBD Center
    Leukemia & Lymphoma Program
    Neuromuscular & Movement Disorders Program
    Nutritional Consultations
    Sleep Disorders Center
    Sports Health
  • Locations

    Nicklaus Children’s Hospital has several outpatient and urgent care centers throughout South Florida, including on-demand, virtual care.

    See All Locations
    Urgent Care Centers

    Walk-in urgent care with no appointment needed.

    Primary Care Centers

    Serving as your child's primary doctor's office.

    Specialty Care Centers

    Pediatric specialty consultations available closer to home.

    Outpatient Centers

    A full range of comprehensive services all under one roof.

    Virtual Care

    Connect with providers from the comfort of your own home.

  • Find a Clinician

    With over 800 pediatric clinicians on staff, we’re dedicated to helping you connect with the right specialist for your needs.

    See All Physicians, APRNs & PAs
    Highlighted Specialties
    Hematology/Oncology
    Neurosurgery
    Spine Surgery
    Cardiology
    Sports Medicine
    General Pediatrics
  • Conditions

    We have expertise in treating children and educating families on hundreds of different conditions.

    See All Conditions
    Check Your Symptoms
    Browse conditions by name:
    A B C D E F G H I J K L M N O P
    Q
    R S T U V W X Y Z
  • Treatments

    We use cutting-edge, specialized treatments and procedures to ensure the best care for your child.

    See All Treatments
    Check Your Symptoms
    Browse treatments by name:
    A B C D E F G H I
    J
    K L M N O P
    Q
    R S T U V W X
    Y
    Z
  • Patient Resources
    Patient Resources
    Accepted Health Insurance Pay Your Bill Patient Portal Pricing and Estimates
    Visiting Nicklaus Children's
    Planning Your Visit
    Maps
    Rapid Registration
    Family Centered Care Services
    Global Health: International Patients
    Health Information
    For Peds Sake! Podcast
    Parenting Blog
    Health and Safety Information
    SAFE KIDS Miami Dade
    Community Events
    Supplemental Resources
    Medical Records
    Financial Services
    Apps & Portals
    Language Resources
    HIPAA
    Accepted Health Insurance Pay Your Bill Patient Portal Pricing and Estimates
  • About Us
    About Us
    Our Quality Care
    Our Mission, Vision and Values
    Health System and Hospital Highlights
    History
    Ethics & Compliance and Internal Audit
    Process Improvement
    Leadership
    Board of Directors
    Administrative Fellowship
    Administrative Leadership Team
    Medical Executive Committee
    Our Health System
    Nicklaus Children's Health System
    Nicklaus Children's Hospital Foundation
    Nicklaus Children's Pediatric Specialists
    Nicklaus Children's Pediatric Virtual Care
    Our Healthcare Partners
    Our Community
    Inspiring Patient Stories
    Medical Education
    News & Events
    Phone Directory
    Kenneth C. Griffin Surgical Tower
    Volunteers
  • Make Appointment
  • English Careers For Healthcare Professionals Donate Contact Us
Medical Services ► Clinical Trials ► ONC99088 (APEC14B1)
  • Research Institute Home
  • Human Subjects Protection Program
  • Meet the Team
  • Latest News
  • Clinical Trials
  • FAQ

Project: Every Child for Younger Patients With Cancer

Study Details

The Project: EveryChild Protocol: A Registry, Eligibility Screening, Biology and Outcome Study

Conditions: Adrenal Gland Pheochromocytoma, Carcinoma In Situ, Central Nervous System Neoplasm, Childhood Immature Teratoma, Childhood Kidney Neoplasm, Childhood Langerhans Cell Histiocytosis, Childhood Mature Teratoma, Congenital Mesoblastic Nephroma, Desmoid Fibromatosis, Ganglioneuroma, Lymphoproliferative Disorder, Malignant Neoplasm, Malignant Solid Neoplasm, Melanocytic Neoplasm, Myeloproliferative Neoplasm, Neoplasm of Uncertain Malignant Potential, Neuroendocrine Neoplasm, Stromal Neoplasm

Study ID:

ONC99088 (APEC14B1)

Study Description

This study gathers health information for the Project: Every Child for younger patients with cancer. Gathering health information over time from younger patients with cancer may help doctors find better methods of treatment and on-going care.

Eligibility Requirements

Inclusion Criteria

  • Enrollment must occur within 6 months of initial disease presentation OR within 6 months of refractory disease, disease progression, disease recurrence, second or secondary malignancy, or post-mortem
  • Patients previously enrolled on ACCRN07 are eligible to enroll on Tracking Outcome, Registry and Future Contact components of APEC14B1 any time after they reach age of majority
  • Patients with a known or suspected neoplasm that occurs in the pediatric, adolescent or young adult populations are eligible for enrollment as follows:

    • All cancer cases with an International Classification of Diseases for Oncology (ICD-O) histologic behavior code of one "1" (borderline), two "2" (carcinoma in situ) or three "3" (malignant)
    • All neoplastic lesions of the central nervous system regardless of behavior, i.e., benign, borderline or malignant
    • All neoplastic lesions of the kidney regardless of behavior, i.e., benign, borderline or malignant
    • The following other benign/borderline conditions:

      • Mesoblastic nephroma
      • Teratomas (mature and immature types)
      • Myeloproliferative diseases including transient myeloproliferative disease
      • Langerhans cell histiocytosis
      • Lymphoproliferative diseases
      • Desmoid tumors
      • Gonadal stromal cell tumors
      • Neuroendocrine tumors including pheochromocytoma
      • Melanocytic tumors, except clearly benign nevi
      • Ganglioneuromas
  • Subjects must be =< 25 years of age at time of original diagnosis, except for patients who are being screened specifically for eligibility onto a COG (or COG participating National Clinical Trials Network [NCTN]) therapeutic study, for which there is a higher upper age limit
  • All patients or their parents or legally authorized representatives must sign a written informed consent and agree to participate in at least one component of the study; parents will be asked to sign a separate consent for their own biospecimen submission

    • If patients or their parents or legally authorized representatives have not signed the Part A subject consent form at the time of a diagnostic bone marrow procedure, it is recommended that they initially provide consent for drawing extra bone marrow using the Consent for Collection of Additional Bone Marrow; consent using the Part A subject consent form must be provided prior to any other procedures for eligibility screening or banking under APEC14B1

Principal Investigator

Ziad Khatib

More Information

To learn more visit: https://clinicaltrials.gov/study/NCT02402244.


This page was last updated on: August 06, 2025 08:54 AM

Ranked by U.S. News & World Report Among the Best Children's Hospitals.
Recognized by Newsweek as a world's best specialized hospital.
Leapfrog Top Hospital Award for Outstanding Quality and Safety.
Your local children's miracle network hospital.
Facebook Tik Tok Instagram YouTube
EmailGet Our Newsletter DonateDonate

3100 S.W. 62nd Ave Miami, FL 33155

Local: +1(305)666-6511
Toll-free: +1(800)432-6837
Main Hospital Campus

3100 S.W. 62nd Ave Miami, FL 33155

Local: +1(305)666-6511
Toll-free: +1(800)432-6837
Medical Services
  • Medical Services
  • Brain Institute
  • Cancer & Blood Disorders Institute
  • Heart Institute
  • Orthopedics, Sports Medicine & Spine Institute
  • Sports Health
Locations
  • Locations
  • Urgent Care Centers
  • Outpatient Centers
  • Pediatric Care Centers
  • Specialty Care Centers
Patient Resources
  • Patient Resources
  • Pay Your Bill
  • Accepted Health Insurance
  • Financial Services
  • Medical Records
  • Price Transparency
  • Symptom Checker
About Us
  • About Us
  • Our Mission, Vision and Values
  • How Can I Help?
  • Health System
  • Foundation
  • News & Events
  • Phone Directory
  • Mask Wearing Requirements
Logins and Portals
  • Board Members Login
  • Employee and Physician Login
  • MEC Login
  • Vendor Portal
  • Patient Portal
Language Services
  • Language Services
  • عربي | 中国人 | Français | Deutsch | Ελληνικά | Kreyòl Ayisyen | עברית | हिंदी | Italiano | 한국어 | Polski | Português | Русский | Español | ไทย | Tiếng Việt |
Información en Español
Accessibility and Usability
Notice of Privacy Practices
Web Site Information Disclaimer
Masking Requirements

© 2025 Nicklaus Children's Hospital. All Rights Reserved.