Boy with Rare, Genetic Syndrome Returns Home to Trinidad After Complex Craniofacial Surgery

Published on: 07/20/2017

Seven year-old Mesut Hosein, who resides in Trinidad, traveled to Miami with his family for the eight-hour surgery last month.

“We are delighted to be able to provide this life-changing surgery to Mesut and we are eager to see how his new appearance will improve his overall quality of life. This would not have been possible without the collaboration of the entire team of surgeons and medical professionals from the Craniofacial Center” said Dr. Chad Perlyn, pediatric plastic surgeon at Nicklaus Children’s Hospital.

Mesut was born with a rare genetic condition called Apert Syndrome, in which the bones in the skull grow misshapen and fused together. This condition can cause difficulties with feeding, limitations with vision and can dangerously inhibit brain growth. Some children, including Mesut, are also born with fused bones in their hands and feet that cause a web-like appearance.

Dr. Chad Perlyn and pediatric neurosurgeon Sanjiv Bhatia, along with pediatric plastic surgeon Dr. Anthony Wolfe, carefully planned for the complex surgery, which consisted of repositioning the bones in Mesut’s face and skull and creating enough space for new bone growth. A distraction device was placed around the boy’s face during surgery to encourage the new bone growth, which is expected to be completed and then removed in three months.

Dr. Perlyn and Dr. Bhatia first operated on Mesut when he was eight month’s old to alleviate the pressure in his brain. He also underwent surgery two years later to separate the bones in his hands which allowed him to gain better control and dexterity.

The Hosein family are overjoyed to have passed another milestone in Mesut’s medical journey and are eager to return home by the end of the week. When asked how he feels about his new appearance, Mesut says he is happy he is now able to look more like Mesut.

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The Craniofacial Center at Nicklaus Children’s is a full-service program for children with craniofacial differences. The program offers comprehensive management of all congenital and acquired craniofacial anomalies, through a comprehensive, multidisciplinary care team of pediatric specialists and subspecialists.

About Nicklaus Children's Hospital, Where Children Matter Most ™ (2024)

Founded in 1950 as Variety Children's Hospital, Nicklaus Children's is South Florida's only licensed specialty hospital exclusively for children, with approximately 850 attending physicians, including more than 500 pediatric subspecialists. The 307-bed hospital is renowned for excellence in all aspects of pediatric medicine, with many specialty programs routinely ranked among the best in the nation by U.S. News & World Report since 2008. The hospital is also home to the largest pediatric teaching program in the southeastern United States and since 2003 has been designated an American Nurses Credentialing Center (ANCC) Magnet facility, the nursing profession's most prestigious institutional honor. For more information, please visit

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