The Neuromuscular & Movement Disorders Program at Nicklaus Children’s Hospital offers multidisciplinary evaluation, treatment and support for children with neuromuscular disorders, including muscular dystrophies, neuropathies, spinal muscular atrophy and congenital myopathies.
A Multidisciplinary Team of Specialists
The program brings together an entire team of pediatric specialists to consult in the diagnosis and management of each child during monthly collaborative clinics. This team approach simplifies the care journey for families, enabling them to consult with all needed specialists during a single clinic visit and benefit from the collective assessment of the entire team. The specialty team includes physicians in the following pediatric specialties:
- Clinical genetics
The Care Experience
During the monthly clinics, patients have the opportunity to meet individually with each member of the clinical team to discuss the patient’s care status and specific needs. During the clinic, physicians and the patients also consult collectively to ensure that all aspects of care are addressed from a multidisciplinary perspective. Between visits, the clinical care coordinator is available to address questions and concerns.
The Spasticity and Movement Disorders Clinic offers a variety of treatments options to manage spasticity including Selective dorsal rhizotomy (SDR) and the Baclofen pump. Treatments options are individualized to each patient depending on the cause of the condition, age, general health and nutritional status as well as goals of treatment.
Wheelchair/Seating and Mobility Clinic
The Wheelchair and DME (Durable Medical Equipment) Clinic
held once a week, serves children with a variety of musculoskeletal conditions ranging from muscular dystrophy, spina bifida and cerebral palsy. Patients can be evaluated and fitted for wheelchairs, specialized walkers, chairs and bath equipment. There is a multi-specialty group of providers including a physical therapist, orthotist and wheel chair vendors who evaluate the each patient’s abilities and needs.