What is Gorham Syndrome?

Also known as: Gorham Syndrome

Gorham syndrome is a rare condition involving gradual bone loss that can affect one or more bones.
The cause is unknown and clinical onset is from childhood to young adulthood.
Associated symptoms include:
  • hemangiomas on one side of the body that can affect one or several contiguous bones
  • massive bone destruction
  • bone fibrosis
  • osteoporosis
  • fractures
  • diffuse muscle atrophy
Superficial hemangiomas may not always be present. When the rib cage is involved, it is usually fatal.

This page was last updated on: 1/29/2019 3:21:13 PM

© 2021 Nicklaus Children's Hospital. All Rights Reserved.