Also known as: adamantinomatous craniopharyngioma, ordinary craniopharyngioma, papillary craniopharyngioma, Rathke pouch tumor, hypophyseal duct tumor, adamantinoma
What is a craniopharyngioma?
A craniopharyngioma is a non-cancerous brain tumor that develops from cells present during early brain development, and in childhood frequently presents between the ages of 5-14 years. It causes problems because it can grow and press on other parts of the brain (or glands near it) which are involved with sight and hormone production.
What causes craniopharyngioma?
At present while it appears that some chromosomal or genetic abnormalities have been described associated with these tumors, no clear cause has been identified.
What are the symptoms of craniopharyngioma?
Symptoms may include headache, vomiting, vision loss, symptoms of growth hormone and other endocrine gland deficiencies, seizures, mental changes (and other symptoms from brain involvement) and a presentation called "diencephalic syndrome" (which your pediatrician will need to outline for you).
What are craniopharyngioma care options?
Medical care involves managing the hormone problems with hormone replacement therapies; tumor control with chemotherapy (and other medical agents); and radiation. Surgery
to remove the tumor (with or without other therapies) is common though difficult.
Reviewed by: Jack Wolfsdorf, MD, FAAP
This page was last updated on: 5/23/2018 10:34:57 AM
Weekly Support Programs
Participants will learn to optimize neurological potential across the developing age and care continuum, to provide other treatment modalities to optimize results, to provide options for our patients and families, to provide options for our patients and families, and more! Learn more.
From the Newsdesk
Dr. John Ragheb, Director of the Division of Neurosurgery at Nicklaus Children’s Hospital, is among a group of renowned physicians who developed the first evidence-based guideline in the U.S. on mild traumatic brain injury (mTBI) and concussions among children, published by the CDC in September.
Dr. Aaron Berger is a pediatriac hand surgeon at Nicklaus Children's Hospital. For more information about the Brachial Plexus and Peripheral Nerve Disorders Program, please visit nicklauschildrens.org/BrachialPlexus