Parents Connect: Raising Happier, Healthier Kids

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Caring for Rare

Posted by: Cristina Edmunds
Published on: febrero 27, 2018

In honor of Rare Disease Day 2018, I’m sharing with you my experience so far in raising a child with a rare diagnosis. So rare, in fact, he shares the diagnosis with approximately 50 other people worldwide. This is partly because the kind of genetic testing that can be done today is more advanced than ever, and can find the underlying causes of multiple chronic health issues, and partly because it is, in fact, a rare disease. For us, this means many things physically, and emotionally. It requires patience, the ability to acquire and hold on to new knowledge, the openness to learn how to care for your child in a way that does not come naturally, and making peace with unknowns. Let’s dive in.

Helping Families Expecting a Baby with a Medical Condition

Posted by: Eileen Garcell Garcia
Published on: febrero 26, 2018

I am grateful for the opportunity I have been given to be able to provide support to expecting families on the journey to parenthood. Although pregnancy is a time of great joy and excitement, for some parents it can be filled with uncertainty and anxiety, especially when the baby’s health is of concern.

No such thing as planning in parenting

Posted by: Maeghan Garcia
Published on: enero 31, 2018

It’s always a good idea to educate yourself and try to prepare for the challenges that parenthood will inevitably bring. There are various parenting self-help books available and, of course, an experienced mom or dad may be able to offer a pointer or two. But even if you do access all your resources – guess what? You’re going to make mistakes because you’re human and child-rearing is not a perfect science. I promise that nobody has it completely figured out.

Ser mamá de 3

Posted by: Paula Zelaya
Published on: enero 29, 2018

Una pregunta bastante común en estos días es ¿qué se siente ser mamá de 3? Y con el corazón en la mano y muchas ganas de compartir esta aventura, les contaré lo maravilloso y lo complicado que es.
Yo soy hija única, crecí sin hermanos y sin primitos, por lo que siempre soñé con tener una familia grande. Después de tener a mi primera hija, estaba segura que quería tener otro bebé y sin dudas ni miedos, buscamos a mi pequeña Sabrina.

Holidays in the Hospital

Posted by: Cristina Edmunds
Published on: enero 23, 2018

’Twas the night before Christmas, and all through the house, not a creature was stirring because we were stuck in the Special Care Unit at our local children’s hospital fighting a terrible trifecta of pneumonia, bronchiolitis, and gastrointestinal issues. What a vacation, right? Five days of respiratory support, holding feeds, and sleeping on a couch did not really meet our expectations for a Christmas holiday this past year, but it’s where we ended up.

Tough Love

Posted by: Maeghan Garcia
Published on: diciembre 20, 2017

Sometimes it seriously feels like my child hates me, and I know I am not the only mom to ever feel this way. I love that kid more than I could ever adequately express in words, and every single thing that I do, I do with the intention of providing the best possible childhood for him.

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New Pediatric Sports Health Center Focuses on Injury Prevention
03/13/2018 — The Nicklaus Children's Hospital Sports Health Center opened in December 2017 and the team is working to help athletes not only make a comeback but also stop injuries before they happen. 
Medical Mission to Algeria Helps Children in Need of Spinal Surgeries
03/06/2018 — A group of children in Algeria who underwent complex surgeries as part of a 2016 U.S.-sponsored medical mission have many reasons to celebrate, and can do so with better movement of their limbs.